Conferencia Europea de Enfermedades Raras y Medicamentos Huérfanos
La Conferencia es clave para conectar a personas con enfermedades raras, defensores, políticos, profesionales de la salud y representantes de la industria. EURORDIS utiliza esta red para influir en futuras políticas sobre enfermedades raras.
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15 de mayo de 2024 – 16 de mayo de 2024
The ECRD is the largest, patient-led, rare disease policy-shaping event held in Europe.
By bringing together people with rare diseases and patient advocates, policy makers, healthcare industry representatives, clinicians, regulators and Member State representatives, EURORDIS harnesses the power of this extensive network to shape goal-driven rare disease policies of the future.
With over 1000 participants, the Conference is an unrivalled opportunity to network and exchange invaluable insights within the rare disease community. Through collaborative efforts, these discussions culminate in clear policy recommendations that can influence both EU and national policies.
Get ready for the next ECRD, a fully hybrid conference taking place on 15 & 16 May 2024 online and at The Square in Brussels.